Little Amari John has to constantly wear protective clothing to ensure he doesn't get cuts or bruises due to his condition.

A family’s race against time to save their little boy from one of the rarest illnesses globally. 

Amari John cannot play like other children because his diagnosis triggers bouts of uncontrolled bleeding, recurrent infections and skin sensitivity. 

At two years old, every second spent alive is a miracle, and his parents are hoping for another… To help him live a full life.